In a significant move towards improving cardiovascular health, the European cardiovascular disease community is advocating for a shift towards personalised care, especially following a hypercholesterolemia diagnosis.
Recent findings from a study conducted by Global Heart Hub, an international alliance of heart patient organisations, underscore the critical role of the initial consultation between patients and healthcare professionals (HCPs) in shaping individualised care plans. This conversation, researchers argue, should serve as the foundation for a tailored approach to managing cardiovascular disease.
The study, which included participants from Brazil, Australia, and the United States, focused on individuals with high levels of low-density lipoprotein cholesterol (LDL-C), a key indicator of hypercholesterolemia. It revealed that patients place high importance on having a personalised care plan developed collaboratively with their HCPs. Effective communication and shared decision-making were highlighted as essential components of this process.
According to the study, using clear and straightforward language to explain the risks associated with unmanaged LDL-C is crucial in encouraging patients to take their health seriously. A collaborative approach, which takes into account individual circumstances and lifestyle factors, allows for the setting of realistic and achievable health goals. Patients expressed a preference for treatment options that align with their lifestyle, including considerations for the mode and timing of medication.
However, the research also uncovered several structural barriers to effective shared decision-making. Time constraints during medical appointments, administrative burdens, and issues related to access were identified as significant obstacles. Addressing these challenges will require concerted policy changes, facilitated through partnerships between patient advocacy groups and medical societies.
Neil Johnson, Executive Director of Global Heart Hub, emphasised the importance of this initial patient-HCP dialogue. “The Insights from Patients Living with Elevated Cholesterol (IPEC) research highlights how crucial comprehensive communication is in the early stages of a diagnosis,” he said. “Our data suggests that this conversation can profoundly influence the patient’s cardiovascular health journey.”
Professor Kornelia Kotseva, Honorary Professor of Preventive Cardiology at the University of Galway, echoed these sentiments. “I’ve observed firsthand the impact of personalised care plans in managing high cholesterol. By employing a clear, collaborative approach, we can set practical goals that fit patients’ lives and preferences. Our mission is not only to enhance quality of life but also to save lives.”
The IPEC data generation programme is a key component of Invisible Nation, Global Heart Hub’s advocacy initiative. This programme aims to draw attention to the 500 million people worldwide at risk of atherosclerotic cardiovascular disease (ASCVD)-related heart attacks, strokes, or death. In conjunction with the global patient community, the Global Cholesterol Action Plan has been established to drive continued change and address unhealthy cholesterol levels.
For more information on the IPEC study and the European Society of Cardiology (ESC) poster, visit Global Heart Hub’s website.